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SAVE THE DATE

The 10th Annual Passion for Life 5k run/walk and 5 mile run will be taking place on SATURDAY, MARCH 25, 2017 in downtown Walled Lake.

Registration closes 3/23 @ 5:00pm

Early Packet Pickup

Friday 3/24/17:

5:00pm - 8:00pm @ Walled Lake Central HS

  

Race Day Registration

Saturday 3/25/17:

7:00am - 9:30am

  

Race Time:

Saturday 3/25/17: 10:00am

  

Genika Landry

Genika and the Landry family were the third Inspirational Famiy.  Genika was born with severe food allergies. In May of 2008 at the age of four, Genika was playing with some friends and her older brother when she sustained a severe rope burn to her neck. Genika did not yell out or cry.  This was the first sign that there was a problem other than the food allergies.  Genika's parents have been on a relentless search for answers since that day.  Genika has been seen by Neurologists from Children's Hospital of Michigan, Henry Ford Health Systems, and C.S. Mott Children's Hospital at the University of Michigan.  All of the doctors seemed to agree that Genika has a rare neurological condition called Hereditary Sensory Autonomic Neuropathy (HSAN).  Because the condition is so rare and none of the doctors have ever worked with someone with HSAN, Genika and her parents traveled to New York City in April 2009 to meet with Dr. Felicia Axelrod of the Dysautonomia Treatment Center at New York University.  Dr. Axelrod confirmed the diagnosis of HSAN.  HSAN affects Genika in the following ways: she does not seem to feel pain or itch; she develops canker sore type ulcers in her mouth and on her tongue almost daily.  It also has caused skin problems and digestive tract ulcers. One of the most challenging issues that the HSAN causes is that Genika is not able to regulate her temperature.  Her temp has extreme swings from excessively high to dangerously low within an hour or less.  Dr. Axelrod also told the family that she felt that Genika also had some type of autoimmune disease.  Since 2009, Genika has been under the care of a pediatric rheumatologist, allergy/ immunologist, cardiologist, and GI specialists.  These doctors continue to monitor Genika's growth, development, and ongoing health issues.  In July of 2013, Genika started experiencing seizures.  She is currently undergoing more tests to see if the seizures may be related in some way to the HSAN.

 

Genika is the daughter of Paul and Kim Landry and the younger sister to brother Spencer.